Last Thursday was River’s eyelid surgery, and everything went as expected! Here’s a little timeline:
Jan 16th 10:00pm: Fed River formula, last food she will get until after the surgery.
Jan 17th 8am-11:00am: Try our best to distract River from the fact that she is very hungry and very thirsty, give sips of water. Fasting is terrible for a toddler! Next time, if there’s a next time, only ever take a child to an early morning surgery! Wish I had been thinking ahead when I accepted this date and time.
11:30am: Check into Mary Bridge Children’s Hospital/Tacoma General for surgery. Taken to ACU and slowly get prepped. Good news is that we find out they won’t insert an IV into her until after she’s been knocked out from gas! We were highly concerned about the IV causing her problems because she’s very difficult to get one in, runs in the family. We hang out in the room, watch cartoons and color while we are waiting. They give her Versed around 12:15, which will calm her down, and causes an amnesiac effect. We speak to the doctor, Dr. Pratt, who will do the surgery, and basically they explain once she’s ready, he will only work on her for about 4 minutes! They don’t even want us to leave the hospital wing because it’s so quick. The nurse takes River away, who was calm and cooperative by 1:00.
1:1o: Surgery prep & OR.
2:00: Doctor visits to let us know that everything went great and explains her after care. We are taken back to the recovery room, River is now awake and very unhappy. River was crying and shaking her IV hand all about. She was in pain, and mostly upset by her IV site. She does verbalize that her eye and hand hurt. The nurse asks us if we want to give her painkillers and I say YES. Get her comfortable! So they administer fentanyl and Ibprofen, and in about 10 minutes River is much calmer and starts licking on a popsicle.
2:30: Daddy leaves to go get brother from school, we want him to be here to see River, and all leave the hospital together.
3:00: we are finally moved back to the ACU out of recovery, River is much more comfortable but continues to get upset by the IV in her hand. Her eye is very swollen, and blood occasionally tears down into her eye, I have to keep dabbing it up. Daddy and brother arrive soon.
4:00: we get to check out! River is dressed and ready and so happy to get the IV out.
Home we go, it was an exhausting day, but very worthwhile and we know that in no time River will start feeling better and we will leave this behind us.
Our little girl did amazing, she’s a great patient, and old pro, and our little warrior. Daddy caught a very good picture prior to surgery that really shows how much River’s vision was affected by her Horner’s syndrome and Left Eye Ptosis. It’s not a pretty picture but it really illustrates how important this surgery will be for her. It’s much too soon to tell how her eye looks, it’s still red and swollen, even today, but getting better everyday too!
And now onto weaning news: Since January 2nd we stopped tube feeding her. Now it’s been going really good! She’s lost a little weight, but not much, and her drinking and eating are going well, but we’ve hit a little plateau. We hope to get it to pick up soon. We’ve had to supplement a few times in the last 19 days, she had a brief gastric bug she caught from brother a week ago, and the fasting with surgery also made me want to supplement. We only supplement at night, about 7oz of formula. And have done that about 5 times since Jan. 2nd. It’s been an amazing accomplishment to go this long and we sure hope it continues to go up!!!