Thanks to a fellow tubie mom, I was turned on to something that not only is functional, has a medical purpose, but also adorable!
I’m going to out right advertise for MyButtonBuddies.com. First off I have to thank my bestie Becky, who gifted us a week’s worth of these to River! These make a difference in River’s stoma leakage, I am also hoping to get improvement with her granulation. Right now I have to apply a steroid cream twice a day to keep it at bay.
But more important: they make me smile.
And one day River will be old enough to be attracted to their cuteness and get to even pick them out herself!
I don’t struggle to stay positive, but it’s far from easy. Staying positive and believing that there is an end to this is the only way to be as far as I am concerned. It wasn’t easy to keep my chin up during some of our hardest moments as a family. I was always aware that I was just barely keeping my fear quelled by truly believing that River was going to survive. That she would come home from the hospital one day. That she would smile one day. That we would all be together one day. It was all the “little” things that fueled my faith in the positive. Visiting the ICN and taking her tempature, and it being normal. Or getting to change her tiny preemie clothes into something that came from home. Looking down at my sleepy girl all wrapped up and living in a busy nursery and seeing how calm and pain free she was. It was just the little things that got me through the day. And so when I say things like “staying positive”, “believing” and “faith”. It was hard work to do so, and I needed help. I had my husband, and my son, the amazing support of my family(and when I say family, I mean every close friend is a part of that) and not to mention an anti-depressant. And seeing these little fleecy circles cut from bright playful fabric that embrace my daughter’s tiny little tube, it’s one of those “little” things that keep me believing that everything will continue to work out and get better, and that River will grow and thrive and survive to be a healthy happy girl! And that one day, we will be able to glue one of these little button buddies into her scrapbook as a reminder of when she use to have a g-tube.
I see an end to this, the tube feeding, but I also have to trust that it will happen when it’s ready to happen, when she’s ready, and that there is no due date, or time stamp, on when that will occur.
Faith, Trust, Belief, Positivity, and CUTENESS!