Happy Birthday Ewan!
6 years ago, August 27th, I was only 32 weeks pregnant with my first child, a yet unknown sex. Pete and I, experiencing a non-eventful pregnancy, were taken pretty aback when my water started leaking. I dutifully went into the hospital, never to escape, duhn duhn duuuuuhhnn. I was due around October 15th. In the emergency room in St. Joseph’s they took me to delivery, and gave me something to stop the labor, which wasn’t even noticeable except by the machines. After two really lame weeks of bedrest in the hospital, with my water leaking more and more each day, they decided to induce me. A few days into my hospital stay I decided to find out the sex during an ultrasound. And after 36 hours of super duper awful labor, my beautiful son Ewan Ryder was born at 12:24AM September 11, 2005. He was born at 34 weeks along, but yet a very healthy weight of 5lbs 12oz. Imagine how big he could have got?!?
A NICU stay promptly followed. We were very devasted to experience this reality. The NICU is no ones ideal situation. He didn’t have any serious conditions, but as most preemies are, they are sleepy. His breathing took a few days to become normal, and he took many days to get in acceptable feedings. 10 days in the NICU, then he came home! He was a classic preemie, sleepy, a slow and weak eater, but each day he grew stronger and ate better. I had to pump for over a month with him, and he had to bottle feed at first. Fortunately we were able to switch him over to breast, and he thrived at home and never looked back.
Ewan was and still is a delightful personality. He is happy, he is kind, he is loving. My first year with Ewan was a first-time mommie’s dream. We floated through it and were very happy with our new parenthood lifestyle.
At around 12-15 months we noticed his speech delay. At 18 months our doctor was aware of our concerns. At 2 years old he is finally given referrals for speech and hearing. He was wait-listed for intervention. And after many appointments and exams, he finally got his first speech therapist. He was about 2 1/2 years old when we started. He had already been attending a co-op preschool, and I continued to keep him in preschool. At 3 years old he could finally go to Childfind, and they got him into a class at our local school. He has been receiving steady speech therapy ever since. At 3 years old he could finally call me Mama. At around 3 1/2 years old, his SLP finally felt like he could be diagnosed as apraxic.
Childhood Apraxia of Speech, his condition, finally gave us some answers. At least we could understand that this is treatable and there is a light at the end of the tunnel. It is rare, and we have never met another family or child with it. CASANA has helped provide resources and information. We will be attending a walk, ourselves, next weekend up in North Bend. Even though North Bend is a healthy hour and a half drive, we feel it’s important to show Ewan others like himself, and for us to meet the families.
The Puget Sound Walk for Apraxia of Speech is September 18th, 2011. Today my baby boy, turns 6!!! He is such a child now, not my baby! Kids this age are very fun, but every once in a while I wouldn’t mind holding my baby again.